The last 5 days have been, well, hell.
We left Oxford on Wednesday as he completed his chemo, but since then he has been fighting a massive mental and physical battle. George has really been hit hard by his overall mental state but he is also dealing with debilitating, agonising pain in his tummy and bottom and very high temperatures spikes caused by, as yet unknown, infection. He is on IV morphine, fluids and all his other drugs. He shook uncontrollably yesterday as the teams battled to stop his temperature getting going over 40. He is at his most vulnerable right now as all his levels have crashed. No immune system, no barriers at all. He had platelets last night which had to be rushed from Bristol as there were none locally. We have been in and out of Wexham park since Saturday but are now back at Oxford as he needs their specialist teams.
This is a part of the treatment that you just can’t comprehend; as a mummy and daddy looking on its just the scariest thing possible, we feel like we are holding on by the fingertips with someone constantly stamping on our hands as you dangle over the precipice of this horrendous disease.
The good news is as always; our little boy is fighting, he is beating this, he will win; however steep the mountain, however high the cliff, however deep that precipice proves to be, George will not be beaten! Come on George!
Please do consider platelets and blood. Without this, George can’t fight. It’s not easy to do and there are few centres but if you get the chance please do call blood uk NHS.